NATIONAL MONTH

ALS Awareness Month

ALS Awareness Month isn't about diagnosis — it's about dignity. About showing up, showing support, and pushing for change.

WHEN

May is designated as ALS Awareness Month.

Roots: ALS Awareness Month was established in 1992.
Vibe: A sense of community and hope prevails in awareness efforts.
Hashtag: #ALSAwarenessMonth

Send a card Email a friend

Ways to celebrate

Small, doable ways to celebrate ALS Awareness Month.

Share one reputable resource with your network.
Donate to a patient-led organization working on als awareness.
Check in on someone you know who's living with it.
Book the screening or appointment you've been putting off.
Listen more than you speak.

Fast facts

About 10%Of ALS cases are inherited through a mutated gene.

Every 90 minutes, someone is diagnosed with ALS.

The story

Amyotrophic lateral sclerosis (ALS) affects nerve cells in the brain and spinal cord, leading to loss of muscle control. Each year, May serves as a time for communities to unite and raise awareness about this debilitating disease. The ALS Association encourages individuals to educate themselves and others about the challenges faced by those living with ALS.

Read the full story

Throughout ALS Awareness Month, various events are organized nationwide, including walks, runs, and fundraisers. These activities not only promote awareness but also raise crucial funds for research aimed at finding effective treatments. Families and friends of ALS patients often share their stories to highlight the emotional and physical toll that the disease takes.

In addition to fundraising efforts, education plays a key role during this month. Schools and organizations are encouraged to host informational sessions and distribute resources that explain the impact of ALS. Raising awareness can lead to greater public support for research initiatives.

As May comes to a close, the spirit of ALS Awareness Month continues to inspire hope and resilience. Communities across the United States and beyond unite in solidarity with those affected, affirming their commitment to finding a cure. Every effort counts, and together, we can make a difference for those battling ALS.

Worth knowing

Understanding ALS

ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects motor neurons in the brain and spinal cord.

Participate in Events

Join local ALS walks or runs to raise funds for research and support. These events foster community spirit and awareness.

Educate Yourself

Take time to learn about ALS, its symptoms, and the challenges faced by those living with the disease. Knowledge is power.

Support Those Affected

Reach out to friends or family members affected by ALS. Your support can make a significant difference in their lives.

Did you know?

Famous People with ALS

Notable figures like physicist Stephen Hawking and musician Jason Becker have lived with ALS.

The Ice Bucket Challenge

The Ice Bucket Challenge in 2014 significantly raised awareness and funding for ALS research.

Global Impact

ALS affects people worldwide, with varying incidence rates across different regions.

Research Funding

Increased awareness has led to more funding for ALS research and potential treatments.

Symptoms of ALS

Common symptoms of ALS include muscle weakness, difficulty speaking, and respiratory issues.

Genetic Factors

About 10% of ALS cases are familial, linked to inherited genetic mutations.

Survival Rates

Most people with ALS live three to five years after symptoms appear, and about 1 in 10 survive 10 years or more.

Around the world

Every culture celebrates a little differently.

USUnited StatesThe U.S. hosts numerous events during ALS Awareness Month, uniting families and communities.
CACanadaCanadian organizations also participate in raising awareness and funds for ALS research.
GBUnited KingdomIn the UK, ALS is known as motor neuron disease, and awareness efforts are similarly impactful.
AUAustraliaAustralia hosts various ALS awareness events, contributing to global awareness and research funding.
DEGermanyGermany supports ALS research through various initiatives and community events.
NZNew ZealandNew Zealanders actively participate in ALS awareness campaigns to support affected individuals.