ALS Awareness Month
ALS Awareness Month isn't about diagnosis — it's about dignity. About showing up, showing support, and pushing for change.
Why it matters
JOIN THE AWARENESS
May is a month to shine a light on ALS and support those who are affected.
THE STORY
Amyotrophic lateral sclerosis (ALS) affects nerve cells in the brain and spinal cord, leading to loss of muscle control. Each year, May serves as a time for communities to unite and raise awareness about this debilitating disease. The ALS Association encourages individuals to educate themselves and others about the challenges faced by those living with ALS.
Throughout ALS Awareness Month, various events are organized nationwide, including walks, runs, and fundraisers. These activities not only promote awareness but also raise crucial funds for research aimed at finding effective treatments. Families and friends of ALS patients often share their stories to highlight the emotional and physical toll that the disease takes.
In addition to fundraising efforts, education plays a key role during this month. Schools and organizations are encouraged to host informational sessions and distribute resources that explain the impact of ALS. Raising awareness can lead to greater public support for research initiatives.
As May comes to a close, the spirit of ALS Awareness Month continues to inspire hope and resilience. Communities across the United States and beyond unite in solidarity with those affected, affirming their commitment to finding a cure. Every effort counts, and together, we can make a difference for those battling ALS.
WORTH KNOWING
Understanding ALS
ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects motor neurons in the brain and spinal cord.
Participate in Events
Join local ALS walks or runs to raise funds for research and support. These events foster community spirit and awareness.
Educate Yourself
Take time to learn about ALS, its symptoms, and the challenges faced by those living with the disease. Knowledge is power.
Support Those Affected
Reach out to friends or family members affected by ALS. Your support can make a significant difference in their lives.
AROUND THE WORLD
DID YOU KNOW?!
Famous People with ALS
Notable figures like physicist Stephen Hawking and musician Jason Becker have lived with ALS.
The Ice Bucket Challenge
The Ice Bucket Challenge in 2014 significantly raised awareness and funding for ALS research.
Global Impact
ALS affects people worldwide, with varying incidence rates across different regions.
Research Funding
Increased awareness has led to more funding for ALS research and potential treatments.
Symptoms of ALS
Common symptoms of ALS include muscle weakness, difficulty speaking, and respiratory issues.
Genetic Factors
About 5-10% of ALS cases are hereditary, linked to genetic mutations.
Survival Rates
The average survival time after diagnosis is about 2 to 5 years, but some live much longer.
READ MORE
Tuesdays with Morrie
Mitch Albom · 1997
A touching memoir that explores the lessons of life and death, as the author reconnects with his former professor, Morrie Schwartz, who battles ALS.
Until I Say Goodbye
Susan Spencer-Wendel · 2013
This memoir recounts the author’s journey with ALS, highlighting her experiences and the importance of cherishing life.
The ALS Handbook
Dr. Jonathan Glass · 2018
A comprehensive guide for patients and families affected by ALS, covering symptoms, treatments, and coping strategies.
Every Minute is a Day
Robert R. McCulloch · 2020
An insightful narrative that provides an in-depth look at living with ALS and the emotional challenges it presents.
PAIR IT WITH
Be part of the solution by supporting ALS research.
Use your voice to raise awareness for ALS.
Support those affected by ALS through community engagement.
Dress in ALS colors to show your support during May.
Get Involved Today
Learn how you can contribute to ALS Awareness Month and support those affected by this disease. Every action counts.
How to celebrate
Small, doable ways to celebrate ALS Awareness Month.
- Share one reputable resource with your network.
- Donate to a patient-led organization working on als awareness.
- Check in on someone you know who's living with it.
- Book the screening or appointment you've been putting off.
- Listen more than you speak.
Celebration ideas by audience
For families
Have the real conversation at the table — stigma-free, no lecture.
For kids
Answer questions honestly and age-appropriately.
For couples
Check in with each other's appointments, screenings, and follow-ups.
At the office
Share vetted resources and encourage people to use their benefits.
At school
Bring in an expert, survivor, or advocate to speak for a class period.
In your community
Run a donation drive, a walk, or a listening session for those affected.
On your own
Reach out to someone you know is living with it. Ask how they're doing for real.