National Sickle Cell Awareness Month – September
Why it matters
SICKLE CELL AWARENESS
Join us this September as we bring attention to sickle cell disease and its challenges faced by many across the nation.
THE STORY
Sickle cell disease (SCD) is a group of inherited red blood cell disorders characterized by the presence of sickle-shaped cells. These abnormally shaped cells can lead to various complications, including severe pain, infections, and organ damage. Awareness is crucial, as many people with sickle cell disease are unaware of their condition until symptoms arise, often in childhood.
National Sickle Cell Awareness Month was first established in 1983 by the U.S. Congress to increase awareness of the disease and its impact. This initiative aims to educate the public about the symptoms, challenges, and treatment options available for those living with SCD. Through community events, educational outreach, and fundraising efforts, advocates strive to improve the quality of life for patients.
In addition to raising awareness, September serves as a reminder of the ongoing need for research funding. Organizations such as the Sickle Cell Disease Association of America (SCDAA) and the American Society of Hematology (ASH) work diligently to promote research and develop new treatments. Increased funding can lead to advancements in therapies and potentially, a cure for sickle cell disease.
Globally, sickle cell disease affects millions, particularly in regions where malaria is prevalent. In countries like Nigeria and India, the genetic trait for sickle cell is more common. As such, awareness efforts must extend beyond national borders, fostering a global community dedicated to combating this disease and supporting those affected.
Awareness is the first step toward change.
WORTH KNOWING
Understand Sickle Cell
Learn about the symptoms and challenges faced by those with sickle cell disease.
Support Research
Contribute to organizations that fund sickle cell research and treatment.
Educate Others
Share knowledge about sickle cell disease with friends and family.
Join the Community
Participate in events that raise awareness and support for sickle cell patients.
AROUND THE WORLD
DID YOU KNOW?!
First identified
Sickle cell disease was first described in 1910 by Dr. James Herrick.
Genetic disorder
SCD is caused by a mutation in the HBB gene on chromosome 11.
Pain events
Individuals may experience painful crises known as vaso-occlusive crises.
Lifetime care
Patients often require ongoing medical care and management.
Blood transfusions
Blood transfusions can help manage complications of SCD.
Bone marrow transplant
A potential cure for sickle cell disease is a bone marrow transplant.
Awareness colors
Red is the color associated with sickle cell awareness.
READ MORE
The Sickle Cell Disease Patient's Handbook
By Dr. Maureen A. O'Keefe
A comprehensive guide for patients to understand their condition and treatment options.
The Sickle Cell Chronicles
By Ayesha Shams
A novel that explores the life of a young girl growing up with sickle cell disease.
My Friend Has Sickle Cell
By Jennifer Ellis
A children’s book that explains sickle cell disease in an accessible way.
Living Well with Sickle Cell Disease
By Dr. Kendra A. Williams
Strategies for managing life with sickle cell disease.
PAIR IT WITH
Empower individuals living with SCD.
Stand with the sickle cell community.
Spread the knowledge about SCD.
Show empathy towards those affected.
Raise Awareness Now
This September, help spread the word about sickle cell disease and support those who live with it every day.