NATIONAL MONTH

National Sickle Cell Awareness Month

This September, let's bring attention to sickle cell disease and support those affected.

WHEN

September, annually

Roots: Established in 1983 by the U.S. Congress
Vibe: A month of education, advocacy, and support
Hashtag: #NationalSickleCellAwarenessMonth

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Fast facts

Approximately 100,000Americans are affected

1In 13 African American babies are born with sickle cell trait

The story

Sickle cell disease (SCD) is a genetic blood disorder characterized by the production of abnormal hemoglobin, leading to distorted red blood cells that can cause various health complications. Throughout September, awareness initiatives aim to educate the public about the challenges faced by individuals living with SCD. From pain crises to increased risk of infections, those with the condition require a supportive network to navigate their daily lives.

Read the full story

National Sickle Cell Awareness Month was first established in 1983, highlighting the need for better research, treatment, and support for affected individuals. Advocacy groups around the country organize events, health fairs, and educational programs to spread awareness. Local communities are encouraged to participate actively to foster understanding and compassion for those dealing with this chronic illness.

Organizations such as the Sickle Cell Disease Association of America (SCDAA) play a pivotal role in advocating for research funding and improved healthcare policies. They work tirelessly to provide resources, support, and education for patients and families affected by SCD. The goal is not only to improve treatment but also to eliminate stigma surrounding the disease.

As we observe National Sickle Cell Awareness Month, we can all contribute by sharing information, participating in local events, and supporting organizations dedicated to helping those affected. Whether through donations, volunteering, or simply spreading the word, every effort counts in the fight against sickle cell disease.

Worth knowing

Understanding Sickle Cell

Learn about the symptoms and challenges of living with sickle cell disease.

Share Your Story

Encourage those affected to share their experiences.

Global Impact

Sickle cell disease affects millions worldwide.

Support Research

Contribute to organizations funding sickle cell research.

Did you know?

What causes sickle cell disease?

It is caused by a mutation in the hemoglobin gene.

Life expectancy

With proper care, people with SCD can live into their 50s and beyond.

First symptoms

Symptoms often appear in infancy or early childhood.

Pain crises

These can be triggered by dehydration, stress, or changes in temperature.

Carrier status

Many people carry the sickle cell trait without symptoms.

Blood transfusions

They are a common treatment for severe complications.

Genetic testing

It can help identify carriers and affected individuals early.

Around the world

Every culture celebrates a little differently.

USUnited StatesHome to numerous organizations advocating for sickle cell awareness.
GHGhanaOne of the countries with a high prevalence of sickle cell disease.
BRBrazilSignificant efforts are made to educate the population about SCD.
GBUnited KingdomSickle cell disease is the most common inherited blood disorder.
INIndiaThere is a growing awareness of sickle cell disease among healthcare providers.
ZASouth AfricaEngagement efforts are underway to support affected families.