National Sickle Cell Awareness Month
Why it matters
RAISE AWARENESS TOGETHER
This September, let’s bring attention to sickle cell disease and support those affected.
THE STORY
Sickle cell disease (SCD) is a genetic blood disorder characterized by the production of abnormal hemoglobin, leading to distorted red blood cells that can cause various health complications. Throughout September, awareness initiatives aim to educate the public about the challenges faced by individuals living with SCD. From pain crises to increased risk of infections, those with the condition require a supportive network to navigate their daily lives.
National Sickle Cell Awareness Month was first established in 1983, highlighting the need for better research, treatment, and support for affected individuals. Advocacy groups around the country organize events, health fairs, and educational programs to spread awareness. Local communities are encouraged to participate actively to foster understanding and compassion for those dealing with this chronic illness.
Organizations such as the Sickle Cell Disease Association of America (SCDAA) play a pivotal role in advocating for research funding and improved healthcare policies. They work tirelessly to provide resources, support, and education for patients and families affected by SCD. The goal is not only to improve treatment but also to eliminate stigma surrounding the disease.
As we observe National Sickle Cell Awareness Month, we can all contribute by sharing information, participating in local events, and supporting organizations dedicated to helping those affected. Whether through donations, volunteering, or simply spreading the word, every effort counts in the fight against sickle cell disease.
Knowledge is power, and awareness can lead to action.
WORTH KNOWING
Understanding Sickle Cell
Learn about the symptoms and challenges of living with sickle cell disease.
Share Your Story
Encourage those affected to share their experiences.
Global Impact
Sickle cell disease affects millions worldwide.
Support Research
Contribute to organizations funding sickle cell research.
AROUND THE WORLD
DID YOU KNOW?!
What causes sickle cell disease?
It is caused by a mutation in the hemoglobin gene.
Life expectancy
With proper care, people with SCD can live into their 50s and beyond.
First symptoms
Symptoms often appear in infancy or early childhood.
Pain crises
These can be triggered by dehydration, stress, or changes in temperature.
Carrier status
Many people carry the sickle cell trait without symptoms.
Blood transfusions
They are a common treatment for severe complications.
Genetic testing
It can help identify carriers and affected individuals early.
READ MORE
My Friend Has Sickle Cell Disease
By Jennifer F. Moore
A gentle introduction for children to understand sickle cell disease.
Sickle Cell Disease: A Practical Guide
By Dr. James H. McClure
An informative resource for patients and families.
Pain and Hope: Living with Sickle Cell
By Angela M. Harris
A personal account of living with sickle cell disease.
Sickle Cell Warriors
By the Sickle Cell Disease Association
A call to action for advocacy and support.
PAIR IT WITH
Every drop counts in supporting those with SCD.
Knowledge is vital for understanding the disease.
Join local groups to help those affected.
Wear red to show support this September.
Spread Awareness Today
Share information about sickle cell disease and support those impacted this September. Every effort counts in raising awareness.