NATIONAL MONTH

Spinal Muscular Atrophy Awareness Month

This September, we invite you to join us in raising awareness for SMA, an important cause that deserves our attention.

WHEN

September

Roots: Established in 2014 by the SMA community
Vibe: A month of education, support, and advocacy
Hashtag: #SpinalMuscularAtrophyAwarenessMonth

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Fast facts

1In 11,000 births in the U.S.

Approximately 10,000Individuals in the U.S. live with SMA.

The story

Spinal Muscular Atrophy (SMA) is a genetic disorder characterized by weakness and wasting in the muscles used for movement, caused by the loss of motor neurons in the spinal cord. It is one of the leading genetic causes of infant mortality. The condition affects individuals of all ages, but the most severe forms manifest in infancy, significantly impacting families and loved ones.

Read the full story

SMA is caused by a mutation in the SMN1 gene, which is essential for the production of a protein that supports motor neuron health. Without enough of this protein, motor neurons die, leading to muscle atrophy. There are four main types of SMA, with Type 1 being the most severe. Early diagnosis and intervention can significantly improve quality of life and outcomes for those affected.

Throughout September, various organizations and advocates work tirelessly to increase awareness about SMA and its impact. Events range from virtual seminars to fundraising walks, emphasizing the importance of community involvement and support. Many families share their journeys, helping to foster understanding and compassion, while also pushing for advancements in research and treatment.

As we observe Spinal Muscular Atrophy Awareness Month, it is vital to recognize the resilience of individuals and families living with this condition. Awareness leads to advocacy, encouraging research funding, improving accessibility to treatments, and ensuring that every voice is heard in the fight against SMA.