NATIONAL MONTH

National Cystic Fibrosis Awareness Month

On National Cystic Fibrosis Awareness Month, we listen louder, learn more, and make sure no one feels invisible.

WHEN

May is observed annually for cystic fibrosis awareness.

Roots: Observed in May since the mid-1990s.
Vibe: A month of awareness, support, and community engagement.
Hashtag: #NationalCysticFibrosisAwarenessMonth

Send a card Email a friend

Ways to celebrate

Small, doable ways to celebrate National Cystic Fibrosis Awareness Month.

Share one reputable resource with your network.
Donate to a patient-led organization working on cystic fibrosis awareness.
Check in on someone you know who's living with it.
Book the screening or appointment you've been putting off.
Listen more than you speak.

Fast facts

Close to 40,000 children and adults in the U.S. live with CF.

An estimated 105,000 people have been diagnosed with CF across 94 countries.

The story

Cystic fibrosis (CF) is a progressive genetic disorder that affects the lungs and digestive system, making it difficult for the body to breathe and absorb nutrients. It is caused by mutations in the CFTR gene, which regulates salt and water movement in and out of cells. In the United States, close to 40,000 children and adults are living with this chronic illness. As a result, National Cystic Fibrosis Awareness Month, observed every May, plays a pivotal role in raising awareness about the disease and promoting research efforts.

Read the full story

During this month, various organizations, including the Cystic Fibrosis Foundation, work tirelessly to educate the public about CF and its impact on patients and families. Events such as fundraising walks, educational seminars, and community outreach are organized to engage individuals in understanding the challenges faced by those living with cystic fibrosis. Through these initiatives, people become more informed about the importance of early diagnosis and advancements in treatment options.

Plus, advancements in treatment have significantly improved the quality of life for those with CF. Therapies such as CFTR modulators have transformed the management of the disease, allowing many to lead healthier, more active lives. While these advancements are promising, continuous research and funding are crucial to finding a cure. National Cystic Fibrosis Awareness Month serves as a reminder of the ongoing need for support and advocacy in the fight against this debilitating disease.

Community involvement is essential during this observance, not only to support those affected by CF but also to foster a sense of unity and hope. By participating in local events or sharing information on social media, individuals can contribute to a larger movement dedicated to improving the lives of those living with cystic fibrosis. This May, let us come together to raise awareness, support families, and advocate for a future free from cystic fibrosis.