NATIONAL MONTH

National TAR Syndrome Awareness Month

On National TAR Syndrome Awareness Month, we listen louder, learn more, and make sure no one feels invisible.

WHEN

April each year

Roots: Launched in 2021 by Jylan Ross and the Uniquely Me Foundation/TAR Syndrome Association
Vibe: Empowerment through education and support
Hashtag: #NationalTARSyndromeAwarenessMonth

Send a card Email a friend

Ways to celebrate

Small, doable ways to celebrate National TAR Syndrome Awareness Month.

Share one reputable resource with your network.
Donate to a patient-led organization working on tar syndrome awareness.
Check in on someone you know who's living with it.
Book the screening or appointment you've been putting off.
Listen more than you speak.

Fast facts

Affects fewer than 1 in 100,000 newborns

Inherited in an autosomal recessive pattern

The story

TAR Syndrome, or Thrombocytopenia Absent Radius Syndrome, is a rare genetic disorder characterized by the absence of the radius bone in the forearm and low platelet counts. This condition can lead to various physical challenges, including limb malformations and increased risk of bleeding. Despite these challenges, individuals with TAR Syndrome often lead fulfilling lives, aided by medical advancements and supportive communities.

Read the full story

National TAR Syndrome Awareness Month was established to promote understanding and compassion for those affected by this condition. Advocacy groups have played a crucial role in this initiative, organizing events and creating resources to educate the public. By raising awareness, these organizations aim to foster a sense of community and support for families navigating the complexities of TAR Syndrome.

During this month, many communities across the United States host events such as informational seminars, fundraising walks, and family gatherings to celebrate the lives of those with TAR Syndrome. These events not only serve to educate the public but also provide a space for individuals and families to connect, share their experiences, and find encouragement in their journeys.

As we observe National TAR Syndrome Awareness Month, it is important to recognize the strength and resilience of those affected. By spreading awareness and understanding, we can help reduce stigma, promote inclusivity, and support ongoing research efforts aimed at improving the lives of individuals living with TAR Syndrome.