INTERNATIONAL DAYGENERAL

Bohring-Opitz Syndrome (Bos) Awareness Day

Every year on April 6, a small community of families turns love into awareness. Bohring-Opitz Syndrome (BOS) Awareness Day is a day of gentle recognition for families facing one of the rarest conditions known to medicine, and for the researchers working to understand it. In 2027, the day is observed on Tuesday, April 6, when supporters wear gold and denim and share the stories of children whose lives, however brief or long, leave a lasting mark.

APR6

Tuesday, April 6Every year on April 6

days to go

Roots: Organized in 2015 by Taylor Gurganus, co-founder and vice chair of the BOS Foundation. April 6 marks the anniversary of the first BOS Support Group, formed on Facebook in 2011.
Also on Apr 6: Tartan Day · Teflon Day · New Beer’s Eve
Hashtag: #BohringOpitzSyndromeBosAwarenessDay

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3 ways to celebrate

AT HOME

Wear gold and denim

Dress the family in gold and denim on April 6, take a photo together, and share why the colors matter when you post it.

WITH FRIENDS

Learn one story

Read a BOS family's story aloud with friends, then talk about what rare-disease families wish the world understood.

IN THE COMMUNITY

Support research

Donate to the BOS Foundation, join an online awareness event, or ask your school or workplace to go gold and denim for the day.

Plan ahead

Bohring-Opitz Syndrome (Bos) Awareness Day is observed on April 6 every year. Here is where it lands for the next ten years, handy for planners, marketers and party people.

2026Mon, Apr 6this year

2027Tue, Apr 6

2028Thu, Apr 6

2029Fri, Apr 6

2030Sat, Apr 6

2031Sun, Apr 6

2032Tue, Apr 6

2033Wed, Apr 6

2034Thu, Apr 6

2035Fri, Apr 6

2036Sun, Apr 6

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